A text by Marie (GRIMM'S)
#Lassmalwirsein is an annual campaign on World Down Syndrome Day, launched by Lass mal wir sein eV (Let's be together). Founders Sabine and Marianne Lewandowski aim to increase the visibility of people with Down syndrome in society, and to ensure that everyone can and should learn from and with each other. Because in a society full of openness and diversity, everyone benefits.
#Lassmalwirsein promotes presence
The fact is that approximately 200,000 children are born with trisomy 21 worldwide each year, but many more are not. The fear of having a child who doesn't conform to the "norm" and may never lead a "good life" is huge for expectant parents. Nine out of ten decide against having their baby when diagnosed with Down syndrome.
"The main thing is that the child is healthy," is a common saying. However, Down syndrome is not a disease, but a chromosomal variation, and it develops just as randomly as gender. Nevertheless, the presence of three copies of the 21st chromosome still represents a deviation from the ideal in our society.
Sounds like normal family life. And it is.
How is it possible, then, that people whose families have a member with Down syndrome share completely different accounts of their experiences living together than their fears would suggest? They talk about family life full of love and arguments, everyday stress and small moments of happiness, bonding, laughing until your stomach hurts, arguments about the right pair of pants, and the last piece of cake between siblings. Sounds like a completely normal family life. And it is.
Only one thing stands out: The appreciation for the subtle nuances of life seems to be much more pronounced in families with someone with Down syndrome. Finding contentment in the little things and feeling gratitude for one another – people with Down syndrome and those around them seem to be much better at this.
So much closeness - so much love
Every year, #lassmalwirsein creates a booklet that gives a small spotlight to a few people with Down syndrome. With incredibly aesthetic photos, wonderfully touching texts, and meticulous attention to detail, the creators allow us to experience an impressive proximity to each of the people, both big and small, featured. The quotes and short stories from them or their family members are so full of mutual love that one wonders how it's possible that inclusive living hasn't long since become a matter of course for everyone.
More information and source: LET'S BE eV – mariundanne
